Gene
Therapy : CancerBACUP
Charity No 1019719 Providing high quality and up to date information,
practical advice and support for cancer patients and their families.
Gene
Therapy : Cancerhelp UK
Free information service about cancer and cancer care for the general
public, brought to you by The Cancer Research Campaign.
Gene
Therapy : Cancerlink
Charity No 326430 Resource for approximately 500 cancer support and
self-help groups throughout the UK.
Gene
Therapy : Leukaemia Society (UK)
Charity No 1040984 Offers support to affected children, families and
carers, and has a special interest in bone marrow transplantation.
Gene
Therapy: Teenage Cancer Trust
Charity No 1062559 Focuses on the needs of UK teenagers and young adults
with cancer, leukaemia, Hodgkin's and related diseases.
Genetic
Disorders: Moebius Syndrome Support Group
Charity No 1073282 Moebius Syndrome is an extremely rare genetic condition,
caused in part by a failure of some of the cranial nerves to fully develop.
Genetic
Disorders: Neurofibromatosis Association
Charity No 1078790 Charity providing information neurofibromatosis,
an inherited genetic disorder causing tumours on nerve tissue anywhere
in the body.
Genetic
Disorders: Unique - The Rare Chromosome Disorder Support Group
Charity No 1024624 Offers contact with families with an affected member
who has the same rare chromosome disorder or who has similar symptoms
or practical concerns, irrespective of specific chromosome disorder.
Genital
Anomalies: CHARGE
Charity No 1042953, established in 1987. It offers support and advice
to families of affected children and linking where possible.
Growth
Retardation: CHARGE
Charity No 1042953, established in 1987. It offers support and advice
to families of affected children and linking where possible.
Have we missed something? If you know of a good
support organisation or resource not listed in our support section, please
use the links below to tell us about it.
Please note: Inclusion in this directory does not necessarily
imply that raisingkids.co.uk endorses the organisation listed. Raisingkids.co.uk
is not responsible for the content of external sites. In
an emergency always call 999 (UK only).